Pubblicazioni

Autori:

Donisi, Valeria; Gajofatto, Alberto; Mazzi, Maria Angela; Gobbin, Francesca; Busch, Isolde Martina; Ghellere, Annamaria; Rimondini, Michela

Titolo:

Insights for fostering resilience in young adults with multiple sclerosis in the aftermath of the COVID-19 emergency: an Italian survey

Anno:

2021

Tipologia prodotto:

Articolo in Rivista

Tipologia ANVUR:

Articolo su rivista

Lingua:

Inglese

Formato:

Elettronico

Referee:

Sì

Nome rivista:

FRONTIERS IN PSYCHIATRY

ISSN Rivista:

1664-0640

N° Volume:

11

Numero o Fascicolo:

588275

Intervallo pagine:

1-11

Parole chiave:

COVID-19; coping strategies; multiple sclerosis; pandemic; psychological adjustment; psychological support; resilience

Breve descrizione dei contenuti:

Objective: Recent evidence has demonstrated that the COVID-19 pandemic is taking a toll on the mental health of the general population. The psychological consequences might be even more severe for patients with special healthcare needs and psychological vulnerabilities due to chronic diseases, such as multiple sclerosis (MS). Thus, we aimed to explore the psychological impact of this pandemic and of the subsequent healthcare service changes on young adults with MS living in Italy and to examine their coping strategies and preferences regarding psychological support in the aftermath of the pandemic. Methods: Data were collected using a cross-sectional, web-based survey advertised on social networks. We report both quantitative (descriptive statistics, t-tests, and one-way ANOVA) and qualitative data (inductive content analysis). Results: Two hundred and forty-seven respondents (mean age 32 ± 7 years), mainly with relapsing-remitting MS, from all Italian regions participated. Participants felt more worried, confused, sad, and vulnerable because of the disease "during" the pandemic in comparison to their self-evaluation of the period "before" the COVID-19 outbreak. Similarly, their perception of control over MS decreased "during" the pandemic in comparison to the retrospective evaluation of the period "before" the COVID-19 outbreak (p < 0.01). Canceled/postponed visits/exams were listed as the most frequent MS management changes, with modified/postponed pharmacological treatment representing the most stressful change. Psychological support in dealing with pandemic-related fears and improving MS acceptance and well-being was considered extremely important by almost 40% of the respondents. Different coping strategies were mentioned in the qualitative section of the survey, with social support, hobbies, and keeping busy being the most frequent ones. Conclusions: Considering the enormous impact of the pandemic on young adults with MS, we urge MS clinical centers to implement psychological support programs that address the potentially long-lasting psychological negative impact, thus fostering the therapeutic alliance that is being threatened by the infection prevention measures imposed during the pandemic, and promoting psychological resources for adaptively managing future waves of COVID-19.

Pagina Web:

https://doi.org/10.3389/fpsyt.2020.588275

Id prodotto:

119977

Handle IRIS:

11562/1038858

ultima modifica:

16 novembre 2022

Citazione bibliografica:

Donisi, Valeria; Gajofatto, Alberto; Mazzi, Maria Angela; Gobbin, Francesca; Busch, Isolde Martina; Ghellere, Annamaria; Rimondini, Michela, Insights for fostering resilience in young adults with multiple sclerosis in the aftermath of the COVID-19 emergency: an Italian survey «FRONTIERS IN PSYCHIATRY» , vol. 11 , n. 588275 , 2021 , pp. 1-11

Consulta la scheda completa presente nel repository istituzionale della Ricerca di Ateneo