Pubblicazioni

Autori:

Bertini, Alessandro; Manganelli, Fiore; Fabrizi, Gian Maria; Schenone, Angelo; Santoro, Lucio; Cavallaro, Tiziana; Tagliapietra, Matteo; Grandis, Marina; Previtali, Stefano Carlo; Falzone, Yuri Matteo; Allegri, Isabella; Padua, Luca; Pazzaglia, Costanza; Tramacere, Irene; Cavalca, Eleonora; Saveri, Paola; Quattrone, Andrea; Valentino, Paola; Tozza, Stefano; Gentile, Luca; Russo, Massimo; Mazzeo, Anna; Vita, Giuseppe; Prada, Valeria; Zuccarino, Riccardo; Ferraro, Francesco; Pisciotta, Chiara; Pareyson, Davide

Titolo:

Use, tolerability, benefits and side effects of orthotic devices in Charcot-Marie-Tooth disease

Anno:

2024

Tipologia prodotto:

Articolo in Rivista

Tipologia ANVUR:

Articolo su rivista

Lingua:

Inglese

Formato:

A Stampa

Referee:

Sì

Nome rivista:

Journal of Neurology, neurosurgery and psychiatry

ISSN Rivista:

0022-3050

N° Volume:

95

Numero o Fascicolo:

5

Intervallo pagine:

334-341

Parole chiave:

HMSN (CHARCOT-MARIE-TOOTH); NEUROMUSCULAR; NEUROPATHY

Breve descrizione dei contenuti:

Background: Shoe inserts, orthopaedic shoes, ankle-foot orthoses (AFOs) are important devices in Charcot-Marie-Tooth disease (CMT) management, but data about use, benefits and tolerance are scanty. Methods: We administered to Italian CMT Registry patients an online ad hoc questionnaire investigating use, complications and perceived benefit/tolerability/emotional distress of shoe inserts, orthopaedic shoes, AFOs and other orthoses/aids. Patients were also asked to fill in the Quebec User Evaluation of Satisfaction with assistive Technology questionnaire, rating satisfaction with currently used AFO and related services. Results: We analysed answers from 266 CMT patients. Seventy per cent of subjects were prescribed lower limb orthoses, but 19% did not used them. Overall, 39% of subjects wore shoe inserts, 18% orthopaedic shoes and 23% AFOs. Frequency of abandonment was high: 24% for shoe inserts, 28% for orthopaedic shoes and 31% for AFOs. Complications were reported by 59% of patients and were more frequently related to AFOs (69%). AFO users experienced greater emotional distress and reduced tolerability as compared with shoe inserts (p<0.001) and orthopaedic shoes (p=0.003 and p=0.045, respectively). Disease severity, degree of foot weakness, customisation and timing for customisation were determinant factors in AFOs' tolerability. Quality of professional and follow-up services were perceived issues. Conclusions: The majority of CMT patients is prescribed shoe inserts, orthopaedic shoes and/or AFOs. Although perceived benefits and tolerability are rather good, there is a high rate of complications, potentially inappropriate prescriptions and considerable emotional distress, which reduce the use of AFOs. A rational, patient-oriented and multidisciplinary approach to orthoses prescription must be encouraged.

Pagina Web:

https://doi.org/10.1136/jnnp-2023-332422

Id prodotto:

136344

Handle IRIS:

11562/1114666

ultima modifica:

5 maggio 2024

Citazione bibliografica:

Bertini, Alessandro; Manganelli, Fiore; Fabrizi, Gian Maria; Schenone, Angelo; Santoro, Lucio; Cavallaro, Tiziana; Tagliapietra, Matteo; Grandis, Marina; Previtali, Stefano Carlo; Falzone, Yuri Matteo; Allegri, Isabella; Padua, Luca; Pazzaglia, Costanza; Tramacere, Irene; Cavalca, Eleonora; Saveri, Paola; Quattrone, Andrea; Valentino, Paola; Tozza, Stefano; Gentile, Luca; Russo, Massimo; Mazzeo, Anna; Vita, Giuseppe; Prada, Valeria; Zuccarino, Riccardo; Ferraro, Francesco; Pisciotta, Chiara; Pareyson, Davide, Use, tolerability, benefits and side effects of orthotic devices in Charcot-Marie-Tooth disease «Journal of Neurology, neurosurgery and psychiatry» , vol. 95 , n. 5 , 2024 , pp. 334-341

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